Parkinsonism & Related Disorders
Volume 16, Issue 3 , Pages 181-185 , March 2010

Refinement and validation of the Parental Illness Impact Scale

  • David Morley

      Affiliations

    • School of Psychology, Thames Valley University, Paragon House, Brentford, Middlesex TW8 9GA, UK
    • Institute of Neurology, University College London, Queen Square, London WC1N 3BG, UK
    • Corresponding Author InformationCorresponding author. Tel.: +44 (0) 20 8209 4094.
  • ,
  • Caroline Selai

      Affiliations

    • Institute of Neurology, University College London, Queen Square, London WC1N 3BG, UK
  • ,
  • Anette Schrag

      Affiliations

    • Institute of Neurology, University College London, Queen Square, London WC1N 3BG, UK
    • UCL Medical School, University College London, London NW3 2PF, UK
  • ,
  • Alan J. Thompson

      Affiliations

    • Institute of Neurology, University College London, Queen Square, London WC1N 3BG, UK
  • ,
  • Marjan Jahanshahi

      Affiliations

    • Institute of Neurology, University College London, Queen Square, London WC1N 3BG, UK

Received 22 May 2009 ,Revised 13 October 2009 ,Accepted 3 November 2009.

References 

  1. Yahav R, Vosburgh J, Miller A. Emotional responses of children and adolescents to parents with multiple sclerosis. Mult Scler. 2005;11:464–468
  2. Blackford KA. Strategies for intervention and research with children or adolescents who have a parent with multiple sclerosis. Axone. 1992;14:50–54
  3. Schrag A, Morley D, Quinn N, Jahanshahi M. Development of a measure of the impact of chronic parental illness on adolescent and adult children: the Parental Illness Impact Scale (Parkinson's disease). Parkinsonism Relat Disord. 2004;10:399–405
  4. Grimshaw R. Children of parents with Parkinson's disease. A research report for the Parkinson's Disease Society; 1991.
  5. Schrag A, Morley D, Quinn N, Jahanshahi M. Impact of Parkinson's disease on patients’ adolescent and adult children. Parkinsonism Relat Disord. 2004;10:391–397
  6. Topolski T, Edwards T, Patrick D. User's manual and interpretation guide for the Youth quality of life (YQOL) Instruments. Seattle, WA: University of Washington, Department of Health Services; 2002;
  7. Birleson P. The validity of depressive disorder in childhood and the development of a self-rating scale: a research report. J Child Psychol Psychiatry. 1981;22:73–88
  8. Rosenberg M. Society and the adolescent self-Image. Princeton: Princeton University Press; 1965;
  9. Harter S. Manual for the Social Support Scale for Children. Denver, Co: Author; 1985;
  10. Godsall R, Jurkovic G. The Parentification Questionnaire – youth. Atlanta, GA 30303: Georgia State University; 1995;
  11. EuroQoL–a new facility for the measurement of health-related quality of life. Health Policy. 1990;16:199–208
  12. Beck AT, Ward CH, Mendelson M, Mock J, Erbaugh J. An inventory for measuring depression. Arch Gen Psychiatry. 1961;4:561–571
  13. Sarason IG, Sarason BR, Shearin EN, Pierce GR. A brief measure of social support: practical and theoretical implications. J Soc Pers Relat. 1987;4:497–510
  14. Sessions M, Jurkovic GJ. The Parentification Questionnaire. Atlanta, GA 30303: Georgia State University; 1986;
  15. McCubbin H, Olsen D, Larsen A. Family Crisis Orientated Personal scales (F-COPES). In:  McCubbin H,  Thompson A,  McCubbin M editor. Family assessment: resiliency, coping and adaptation – inventories for research and practice. Madison: University of Wisconsin System; 1996;p. 455–507
  16. Moos R, Moos B. Family Environment Scale. Palo Alto: Consulting Psychologists Press; 1980;
  17. Ivarsson T, Lidberg A, Gillberg C. The Birleson Depression Self-Rating Scale (DSRS). Clinical evaluation in an adolescent inpatient population. J Affect Disord. 1994;32:115–125
  18. Blascovich J, Tomaka J. Measures of self-esteem. 1991 In:  Robinson J,  Shaver P,  Wrightsman L editor. Measures of personality and social psychological attitudes. New York: Academic Press; 1991;p. 115–160
  19. Hurst NP, Kind P, Ruta D, Hunter M, Stubbings A. Measuring health-related quality of life in rheumatoid arthritis: validity, responsiveness and reliability of EuroQol (EQ-5D). Br J Rheumatol. 1997;36:551–559
  20. Beck AT, Steer RA, Carbin MG. Psychometric properties of the Beck Depression Inventory: twenty-five years of evaluation. Clin Psychol Rev. 1988;8:77–100
  21. Goglia LR, Jurkovic GJ, Burt AM, Burge-Callaway KG. Generational boundary distortions by adult children of alcoholics; child-as-parent and child-as-mate. Am J Fam Ther. 1992;20:291–299
  22. Newman T. Children of disabled parents: new thinking about families affected by disability & illness. Lyme Regis: Russell House Publishing; 2003;
  23. Gates MF, Lackey NR. Youngsters caring for adults with cancer. Image J Nurs Sch. 1998;30:11–15
  24. Kline P. An easy guide to factor analysis. London: Routledge; 1994;
  25. McDowell I, Newell C. Measuring health: a guide to rating scales and questionnaires. Oxford: Oxford University Press; 1996;
  26. Lohr KN. Assessing health status and quality of life instruments: attributes and review criteria. Qual Life Res. 2002;2002(11):193–205
  27. Helmstater G. Principles of psychological measurement. New York: Appleton; 1964;
  28. Andrews F, Withey S. Social indicators of well-being: American's perceptions of life quality. New York: Plenum; 1976;
  29. Fox C. Questionnaire development. J Health Soc Policy. 1996;8:39–48
  30. Powell JH, Beckers K, Greenwood RJ. Measuring progress and Outcome in Community Rehabilitation after Brain Injury with a new assessment instrument: The BICRO-39 scales. Brain injury community rehabilitation outcome. Arch Phys Med Rehabil. 1998;79:1213–1225

 The review of this paper was entirely handled by an Associate Editor, Vincenzo Bonifati.

PII: S1353-8020(09)00273-9

doi: 10.1016/j.parkreldis.2009.11.001

Parkinsonism & Related Disorders
Volume 16, Issue 3 , Pages 181-185 , March 2010